Process and outcome in communication of genetic information within families: a systematic review

Author:

Gaff Clara L,Clarke Angus J,Atkinson Paul,Sivell Stephanie,Elwyn Glyn,Iredale Rachel,Thornton Hazel,Dundon Joanna,Shaw Chris,Edwards Adrian

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Reference46 articles.

1. Parker M, Lucassen A : Concern for families and individuals in clinical genetics. J Med Ethics 2003; 29: 70–73.

2. Godard B, Hurlimann T, Letendre M, Egalite N : Guidelines for disclosing genetic information to family members: from development to use. Fam Cancer 2006; 5: 103–116.

3. Wilson BJ, Forrest K, van Teijlingen ER et al: Family communication about genetic risk: the little that is known. Community Genet 2004; 7: 15–24.

4. Forrest K, Simpson SA, Wilson BJ et al: To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clin Genet 2003; 64: 317–326.

5. Edwards A, Sivell S, Dundon J et al: Effective risk communication in clinical genetics: a systematic review. Cardiff: Cardiff University, 2006, p 249.

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