Retrospective access to data: the ENGAGE consent experience

Author:

Tassé Anne Marie,Budin-Ljøsne Isabelle,Knoppers Bartha Maria,Harris Jennifer R

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Reference37 articles.

1. Biller-Andorno N, Boggio A, Elger B, Ganguli-Mitra A, Capron A, Mauron A : Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts; in Elger B, Biller-Andorno N, Mauron A, Capron A (dir.) (eds): Ethical Issues in Governing Biobanks: Global Perspectives. Hampshire: Ashgate Publishing Limited, 2008, pp 39–56.

2. Knoppers BM : Genomics and policymaking: from static models to complex systems? Hum Genet 2009; 125: 375–379.

3. European Network for Genetic and Genomic Epidemiology (ENGAGE). Available from: http://www.euengage.org/ .

4. Vayena E, Ganguli-Mitra A, Biller-Andorno N : Guidelines on biobanks: emerging consensus and unresolved controversies; in Elger B, Biller-Andorno N, Mauron A, Capron A (dir.) (eds): Ethical Issues in Governing Biobanks: Global Perspectives. Hampshire: Ashgate Publishing Limited, 2008, pp 23–35.

5. Ries NM : Growing up as a research subject: ethical and legal issues in birth cohort studies involving genetic research. Health Law J 2007; 15: 1–41.

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