Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
Author:
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Genetics
Link
http://www.nature.com/articles/ejhg2012282.pdf
Reference48 articles.
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3. Otlowski M : Donor perspectives on issues associated with donation of genetic samples and information: an Australian viewpoint. J Bioethical Inq 2007; 4: 135–150.
4. Elger BS, Caplan AL : Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework. EMBO Rep 2006; 7: 661–666.
5. Caulfield T, Knoppers BM : Consent, privacy and research biobanks. GPS Policy Brief 2010; 1: 10.
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