Managing clinically significant findings in research: the UK10K example-Reference-Cited by-同舟云学术

Managing clinically significant findings in research: the UK10K example

Published:2014-01-15 Issue:9 Volume:22 Page:1100-1104
ISSN:1018-4813
Container-title:European Journal of Human Genetics
language:en
Short-container-title:Eur J Hum Genet

Author:

Kaye Jane, ,Hurles Matthew,Griffin Heather,Grewal Jasote,Bobrow Martin,Timpson Nic,Smee Carol,Bolton Patrick,Durbin Richard,Dyke Stephanie,Fitzpatrick David,Kennedy Karen,Kent Alastair,Muddyman Dawn,Muntoni Francesco,Raymond Lucy F,Semple Robert,Spector Tim

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Link

http://www.nature.com/articles/ejhg2013290.pdf

Reference15 articles.

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2. Knoppers BM, Deschenes M, Zawati MH, Tasse AM : Population studies; return of research results and incidental findings. Policy statement. Eur J Hum Genet 2012; 14: 1170–1178.

3. Miller FA, Christensen R, Giacomini M et al: Duty to disclose what? Querying the putative obligation to return research results to participants. J Med Ethics 2008; 34: 210–213.

4. Green RC, Berg JS, Grody WW et al: ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing. Genet Med 2013; 15: 565–574.

5. Bovenberg J, Meulenkamp T, Smets E, Gevers S : Biobank research: reporting results to individual participants. Eur J Health Law 2009; 16: 229–247.

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