Measuring informed choice in population-based reproductive genetic screening: a systematic review

Author:

Ames Alice Grace,Metcalfe Sylvia Ann,Archibald Alison Dalton,Duncan Rony Emily,Emery Jon

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Reference80 articles.

1. Khoury MJ, McCabe LL, McCabe ERB : Genomic medicine - Population screening in the age of genomic medicine. N Engl J Med 2003; 348: 50–58.

2. Godard B, ten Kate L, Evers-Kiebooms G, Ayme S : Population genetic screening programmes: principles, techniques, practices, and policies. Eur J Hum Genet 2003; 11: S49–S87.

3. World Health Organisation: Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services. Geneva, 1998.

4. Brehaut JC, O'Connor AM, Wood TJ et al: Validation of a decision regret scale. Med Decis Making 2003; 23: 281–292.

5. Wertz D, Fletcher J, Berg K, Boulyjenkov V : Guidelines on ethical issues in medical genetics and the provision of genetics services, Hereditary Diseases Program, Division of Noncommunicable Diseases Geneva: World Health Organisation, 1995.

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