Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach

Author:

Mostert Menno,Bredenoord Annelien L,Biesaart Monique C I H,van Delden Johannes J M

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Genetics

Reference70 articles.

1. Costa FF : Big Data in biomedicine. Drug Discov Today 2014; 19: 433–440.

2. Mooney SJ, Westreich DJ, El-Sayed AM : Epidemiology in the era of Big Data. Epidemiology 2015; 26: 390–394.

3. Hustinx P EU Data Protection Law: The Review of Directive 95/46/EC and the Proposed General Data Protection Regulation, 2014. Available at https://secure.edps.europa.eu/EDPSWEB/webdav/site/mySite/shared/Documents/EDPS/Publications/Speeches/2014/14-09-15_Article_EUI_EN.pdf .

4. Parliament’s draft GDPR: European Parliament Legislative Resolution on the Proposal for a General Data Protection Regulation, 12 March 2014. Available at http://www.europarl.europa.eu/sides/getDoc.do?pubRef=-//EP//TEXT+TA+P7-TA-2014-0212+0+DOC+XML+V0//EN .

5. Council’s draft GDPR: The General Approach of the Council of the EU on the General Data Protection Regulation, 15 June 2015. Available at http://data.consilium.europa.eu/doc/document/ST-9565-2015-INIT/en/pdf .

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