1. International Rare Diseases Research Consortium (IRDIRC). Available at http://www.irdirc.org/ (accessed 29 September 2015.
2. EURORDIS Position Paper “WHY Research on Rare Diseases” Paris, October 2010. Available at http://www.eurordis.org/sites/default/files/publications/why_rare_disease_research.pdf (accessed 29 September 2015).
3. 3. Regulation (EC) No 141/2000 of the European Parliament and the Council of 16 December 1999 on Orphan Medicinal Products
4. 4. Official Journal of the European Communities, 22.1.2000: L 18/1-18/5.
5. Communication from the Commission to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions on Rare Diseases - Europe's challenges {SEC(2008)2713} {SEC(2008)2712} /* COM/2008/0679 final */.