Broad consent in practice: lessons learned from a hospital-based biobank for prospective research on genomic and medical data-Reference-Cited by-同舟云学术

Broad consent in practice: lessons learned from a hospital-based biobank for prospective research on genomic and medical data

Published:2020-02-21 Issue:7 Volume:28 Page:915-924
ISSN:1018-4813
Container-title:European Journal of Human Genetics
language:en
Short-container-title:Eur J Hum Genet

Author:

Barazzetti Gaia,Bosisio Francesca,Koutaissoff Daria,Spencer Brenda

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Link

http://www.nature.com/articles/s41431-020-0585-0.pdf

Reference53 articles.

1. World Medical Association (WMA). Declaration of Taipei on ethical considerations regarding health databases and biobanks. 67th WMA General Assembly, Taipei, Taiwan, October 2016. https://www.wma.net/policies-post/wma-declaration-of-taipei-on-ethical-considerations-regarding-health-databases-and-biobanks/. Accessed 13 Sept 2019.

2. Hansson MG, Dillner J, Bartram CR, Carlson JA, Helgesson G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol. 2006;7:266–9.

3. Caulfield T. Biobanks and blanket consent: the proper place of the public good and public perception rationales. Kings Law Rev. 2007;18:209–26.

4. Hofmann B. Broadening consent – and diluting ethics? J Med Ethics. 2009;35:125–9.

5. Karlsen JR, Solbakk JH, Holm S. Ethical endgames: broad consent for narrow interests; open consent for closed minds. Cambridge Quart Healthcare Ethics. 2011;20:572–83.

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