Recontacting or not recontacting? A survey of current practices in clinical genetics centres in Europe-Reference-Cited by-同舟云学术

Recontacting or not recontacting? A survey of current practices in clinical genetics centres in Europe

Published:2018-04-23 Issue:7 Volume:26 Page:946-954
ISSN:1018-4813
Container-title:European Journal of Human Genetics
language:en
Short-container-title:Eur J Hum Genet

Author:

Sirchia Fabio,Carrieri Daniele^ORCID,Dheensa Sandi,Benjamin Caroline,Kayserili Hülya,Cordier Christophe^ORCID,van El Carla G.,Turnpenny Peter D.,Melegh Bela,Mendes Álvaro,Halbersma-Konings Tanya F.,van Langen Irene M.,Lucassen Anneke M.,Clarke Angus J.^ORCID,Forzano Francesca,Kelly Susan E.

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Link

http://www.nature.com/articles/s41431-018-0131-5.pdf

Reference24 articles.

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2. Hirschhorn K, Fleisher LD, Godmilow L, Howell RR, Lebel RR, McCabe ERB. Duty to re-contact. Policy statement: Social Ethical and Legal Issues Committee of the American College of Medical Geneticists. Genet Med. 1999;1:171–2.

3. Hunter AGW, Sharpe N, Mullen M, Meschino WS. Ethical, legal, and practical concerns about recontacting patients to inform them of new information. Am J Med Genet. 2001;103:265–76.

4. Carrieri D, Dheensa S, Doheny S, et al. Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom. Eur J Hum Genet. 2017;25:275–9.

5. Otten E, Plantinga M, Birnie E, et al. Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature. Genet Med. 2015;17:668–78.

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