Ethical and social implications of public–private partnerships in the context of genomic/big health data collection-Reference-Cited by-同舟云学术

Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

Published:2024-04-16 Issue:6 Volume:32 Page:736-741
ISSN:1018-4813
Container-title:European Journal of Human Genetics
language:en
Short-container-title:Eur J Hum Genet

Author:

Horn Ruth^ORCID,Merchant Jennifer^ORCID, ,Horn Ruth,Merchant Jennifer,Bale Mark^ORCID,Banner Natalie^ORCID,Cambon-Thomsen Anne^ORCID,Chneiweiss Herve^ORCID,Clarke Angus^ORCID,Hashiloni-Dolev Yael,Kerasidou Angeliki,Lucassen Anneke^ORCID,Parker Michael^ORCID,Patch Christine^ORCID,Prainsack Barbara,Raz Aviad^ORCID,Richter Gesine^ORCID,Winkler Eva^ORCID

Funder

RCUK | Economic and Social Research Council

Wellcome Trust

Institut Universitaire de France

Publisher

Springer Science and Business Media LLC

Link

https://www.nature.com/articles/s41431-024-01608-9.pdf

Reference41 articles.

1. Gaille M, Horn R. The ethics of genomic medicine: redefining values and norms in the UK and France. Eur J Hum Genet. 2021;29:780–8.

2. Horn R, Merchant J, Abecassis M, Bale M, Chneiweiss H, Hallowell N, et al. Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison. Eur J Hum Genet. 2023;31:142–7.

3. Horn R, Kerasidou A. Sharing whilst caring: solidarity and public trust in a data-driven healthcare system. BMC Med Ethics. 2020;21:110.

4. Ipsos M. The one-way mirror: public attitudes to commercial access to health data. 2017. Available from: https://www.ipsos.com/sites/default/files/publication/5200-03/sri-wellcome-trust-commercial-access-to-health-data.pdf.

5. Hillebrand K, Hornuf L, Müller B, Vrankar D. The social dilemma of big data: donating personal data to promote social welfare. Inf Organ. 2023;33:100452.

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