Health first, genetics second: exploring families' experiences of communicating genetic information

Author:

Forrest Laura E,Curnow Lisette,Delatycki Martin B,Skene Loane,Aitken MaryAnne

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Genetics

Reference36 articles.

1. Forrest LE, Delatycki MB, Skene L, Aitken M : Communicating genetic information in families – a review of guidelines and position papers. Eur J Hum Genet 2007; 15: 612–618.

2. Sermijn E, Goelen G, Teugels E et al: The impact of proband mediated information dissemination in families with a BRCA1/2 gene mutation. J Med Genet 2004; 41: e23.

3. Wertz DC, Fletcher JC, Berg K in: (ed): Review of Ethical Issues in Medical Genetics. Geneva: World Health Organization, 2003.

4. Sudell A : To tell or not to tell: the scope of physician–patient confidentiality when relatives are at risk of genetic disease. J Contemp Health Law Policy 2001; 18: 273–295.

5. Australian Law Reform Commission and Australian Health Ethics Committee (ALRC/AHEC): Essentially yours: the protection of human genetic information in Australia. Sydney: Australian Law Reform Commission, 2003. (Report No. 96).

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