Health-related quality of life assessment in adult haemophilia patients: a systematic review and evaluation of instruments

Author:

Szende A.,Schramm W.,Flood E.,Larson P.,Gorina E.,Rentz A. M.,Snyder L.

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference35 articles.

1. World Federation of Hemophilia Global Report 2001 http://www.wfh.org

2. Hoffman R Benz EJ Shattil SJ et al. Hematology. Basic Principles and Practice, 3rd edn 1999

3. Hemophilia and von Willebrand's disease: 1. Diagnosis, comprehensive care and assessment;Association of Hemophilia Clinic Directors of Canada;CMAJ,1995

4. Clinimetric instruments to assess functional health status in patients with haemophilia: a literature review;De Kleijn;Haemophilia,2002

5. Recommendations for evaluating the validity of quality of life claims for labeling and promotion;Leidy;Value Health,1999

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