Family members' experience of familial amyloidotic polyneuropathy disease - an infernal struggle and a fact of life
Author:
Publisher
Wiley
Subject
General Nursing
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1046/j.1365-2648.2000.01291.x/fullpdf
Reference43 articles.
1. The Family Health System as an Emerging Paradigmatic View for Nursing
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3. 4P. Benner (1994 ) The tradition and skill of interpretive phenomenology in studying health, illness and caring practices . In:Interpretive Phenomenology. Embodyment, Caring, and Ethics in Health and Illness(P.Benner, ed.), Sage, Thousand Oaks, California, pp. 99-127.
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1. Psychosocial burden and professional and social support in patients with hereditary transthyretin amyloidosis (ATTRv) and their relatives in Italy;Orphanet Journal of Rare Diseases;2021-04-07
2. Health-related quality of life in hereditary transthyretin amyloidosis polyneuropathy: a prospective, observational study;Orphanet Journal of Rare Diseases;2020-03-06
3. Family dynamics in transthyretin-related familial amyloid polyneuropathy Val30Met: Does genetic risk affect family functioning?;Clinical Genetics;2018-08-14
4. Death Anxiety and Symbolic Immortality in Relatives at Risk for Familial Amyloid Polyneuropathy Type I (FAP I, ATTR V30M);Journal of Genetic Counseling;2010-08-03
5. Quality of life in patients with familial amyloidotic polyneuropathy long-term after liver transplantation;Amyloid;2009-01
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