1. Akrich, M. , O’Donovan, O. , Rabeharisoa, V. , 2013. The entanglement of scientific and political claims: towards a new form of patients’ activism. In: Wehling, P. , Vienhover, W. , Koenen, S. (Eds.), The Public Shaping of Medical Research: Patient Associations, Health Movements, and Biomedicine. Routledge, London, pp. 72–88.