Life Interrupted: The Impact of Complex Chronic Disease from the Perspective of Hospitalized Patients

Abstract

A growing number of individuals require health services to manage multiple chronic conditions (i.e., complex chronic disease), yet little is known about their experience. The purpose of this study was to investigate the impact of complex chronic disease on the lives of individuals receiving hospital care. Ninety-five participants were interviewed between February and June 2011 and shared their views on how illness impacted their lives. Interviews were transcribed and thematically coded using computer assisted data analysis software. Participants' views were organized into six themes: loss of: autonomy; meaningful activities; structures of meaning; social fabric; mental health; and finances. Most participants articulated multiple losses, particularly those with high illness severity. This study sheds light on the experience of loss as a consequence of disease. To adequately support the needs of these individuals, a model of care must address the interface between mental, social, and physical health.