The Lived Experiences of Israeli Arab Moslems Who are Caring for a Relative with Cognitive Decline

Abstract

The study examined the lived experience of caring for a relative with cognitive decline. The informants were 18 Arab, Moslem caregivers living in rural communities in Northern Israel who participated in personal interviews. The transcripts were analyzed using the hermeneutic phenomenological approach to the study of human behavior (van Manen, 1998). The results clarified how social location affects caregiving perceptions, decisions, and actions. The portrayed experiences were complex and involved the dimensions of life, including individuals, family-neighbors, and social-political environments. The holistic overview of the transcripts indicated the inseparable political and personal influences on perceptions of caregivers, a conflict of old and new social viewpoints, the absence of one main caregiver for the divided duties of several family members, and the lack of scientific information about the condition of the relative. Several motivations for caregiving were documented and examples of personal, interpersonal, and community resources were provided.