Ethical Dilemmas in Testing for Late Onset Conditions: Reactions to Testing and Perceived Impact on Other Family Members
Author:
Affiliation:
1. ; Centre for Family Research; University of Cambridge; Cambridge United Kingdom
Publisher
Wiley
Subject
Genetics(clinical)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1023/A:1016840229609/fullpdf
Reference32 articles.
1. A world-wide assessment of the frequency of suicide, suicide attempts, or psychiatric hospitalisation after predictive testing for Huntington disease;Almquuist;Am J Hum Genet,1999
2. Genetic information and “Genetic Identity.”;Ashcroft,1999
3. Psychological impact of population-based carrier testing for cystic fibrosis: 3 year follow-up;Axworthy;Lancet,1996
4. United Kingdom experience with presymptomatic testing of individuals at 25% risk for Huntington's disease;Benjamin;Clin Genet,2000
5. Future directions in genetic counseling: Practical and ethical considerations;Biesecker-Bowles;Kennedy Inst Ethics J,1998
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