Nonparticipation in Huntington's Disease Predictive Testing: Reasons for Caution in Interpreting Findings
Author:
Affiliation:
1. ; Institute of Medical Genetics; University of Wales College of Medicine; Heath Park, Cardiff CF4 4XN United Kingdom
2. Cardiff Community Health Care Trust; Whitchurch, Cardiff CF4 7XB United Kingdom
Publisher
Wiley
Subject
Genetics (clinical)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1023/A:1025601010891/fullpdf
Reference30 articles.
1. Binedell J Harper PS 1996 Understanding Non-Uptake of Predictive Testing for Huntington's Disease: Knowledge and Attitudes of an Under-Researched Group of At-Risk Persons Fifth European Meeting on Psychosocial Aspects of Genetics Rome
2. Binedell J Soldan JR Harper PS 1995 Understanding and Supporting the Decision-Making Process: Applications of Prochaska and DiClemente's Stages of Change Model to Uptake of Predictive Testing Sixteenth International Meeting of the World Federation of Neurology Research Group on Huntington's Disease Leuven
3. Predictive testing for Huntington disease: II. Demographic characteristics, life-style patterns, attitudes, and psychosocial assessments of the first fifty-one test candidates;Bloch;Am J Med Genet,1989
4. Predictive testing for Huntington Disease in Canada: The experience of those receiving an increased risk;Bloch;Am J Med Genet,1992
5. Carrier screening for cystic fibrosis: A pilot study of the attitudes of pregnant women;Botkins;Am J Public Health,1991
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