“Family Matters”: A Conceptual Framework for Genetic Testing in Children
Author:
Affiliation:
1. ; Department of Pediatrics; Duke University Medical Center; Durham North Carolina
Publisher
Wiley
Subject
Genetics (clinical)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1023/B:JOGC.0000013379.90587.ef/fullpdf
Reference63 articles.
1. Consensus conference. Newborn screening for sickle cell disease and other hemoglobinopathies;Anonymous;JAMA,1987
2. Report: Points-to-consider: Ethical, legal, and psychosocial implications of genetic testing in children and adolescents;American Society of Human Genetics/American College of Medical Genetics;Am J Hum Genet,1995
3. The “four principles” approach;Beauchamp,1994
4. Family systems theory: Background and implications;Becvar;J Commun,1982
5. Parent's and children's attitudes toward the enrollment of minors in genetic susceptibility research: Implications for Informed consent;Bernhardt;Am J Med Genet,2003
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