Patient and clinician views on comparative effectiveness research and engagement in research

Author:

Forsythe Laura P1,Frank Lori1,Walker Kara Odom1,Anise Ayodola1,Wegener Natalie1,Weisman Harlan2,Hunt Gail3,Beal Anne4

Affiliation:

1. The Patient-Centered Outcomes Research Institute (PCORI), 1828 L St NW, Suite 900, Washington, DC 20036, USA

2. And-One Consulting, New Hope, Pennsylvania, USA

3. National Alliance for Caregiving, Washington, DC, USA

4. Sanofi, Paris, France

Abstract

Aims: Describe and compare patient and primary care clinician attitudes about comparative effectiveness research (CER) and inclusion of patients and clinicians as partners in clinical research. Materials & methods: Online survey of patients (n = 900) and primary care clinicians (n = 750) from opt-in survey panels. Results: Nearly half (45%) of clinicians were not familiar with CER, but after reviewing a definition of CER, most (76%) agreed that it can improve patient care. Patients and clinicians indicated interest in engagement as research partners (66% and 55%, respectively). Lack of time was the most commonly endorsed barrier. Conclusion: Attitudes toward CER and engagement in clinical research were generally favorable. Identified facilitators and barriers point to strategies for enhancing patient and clinician engagement in research.

Publisher

Future Medicine Ltd

Subject

Health Policy

Reference35 articles.

1. Comparative Effectiveness Research: A Report From the Institute of Medicine

2. Patient Protection and Affordable Care Act, Subtitle D – Patient-Centered Outcomes Research. 318–319 (2010). www.pcori.org

3. How The Patient-Centered Outcomes Research Institute Is Engaging Patients And Others In Shaping Its Research Agenda

4. Patient-Centered Outcomes Research Institute Methodology Committee. The PCORI Methodology Report. (2013). www.pcori.org

5. Physician Views on the Use of Comparative Effectiveness Research: A National Survey

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