1. Department of Health Behavior, UNC Chapel Hill, Chapel Hill, NC, USA
2. Cecil G. Sheps Center for Health Services Research, UNC Chapel Hill, Chapel Hill NC, USA
3. Department of Epidemiology, UNC Chapel Hill, Chapel Hill, NC, USA
4. Center for Health Promotion & Disease Prevention, UNC Chapel Hill, Chapel Hill, NC, USA
5. Parent/Advocate, Knightdale, NC, USA
6. Parent/Advocate, Family Resource Center South Atlantic, Raleigh, NC, USA
7. Parent/Advocate, Parent Advocates for Adult Children with Intellectual &/or Developmental Disabilities in NC, Chapel Hill, NC, USA
8. Department of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA
9. Parent/Advocate, Family Support Program, School of Social Work, UNC Chapel Hill, Chapel Hill, NC, USA
10. Parent/Advocate, Durham, NC, USA
11. Parent/Advocate, Wake County Sickle Cell Support Group, Raleigh, NC, USA
12. Parent/Advocate, Holly Springs, NC, USA
13. Department of Social Medicine, UNC Chapel Hill, Chapel Hill, NC, USA
14. Department of Medical Social Sciences, Feinberg School of Medicine & Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA