Disclosure of incidental genomic findings involving children: are we making progress?-Reference-Cited by-同舟云学术

Disclosure of incidental genomic findings involving children: are we making progress?

Published:2013-08 Issue:6 Volume:10 Page:519-521
ISSN:1741-0541
Container-title:Personalized Medicine
language:en
Short-container-title:Personalized Medicine

Author:

Williams Janet K¹,Driessnack Martha²,Daack-Hirsch Sandra³,Downing Nancy⁴,Simon Christian⁵

Affiliation:

1. The University of Iowa, College of Nursing, 426 CNB, Iowa City, IA 52242, USA.

2. Oregon Health & Science University, School of Nursing, SN-6S 3455 SW US Veterans Hospital Road, Portland, OR 97239, USA

3. The University of Iowa, College of Nursing, 364 CNB, Iowa City, IA 52242, USA

4. The University of Iowa, College of Nursing, 436 CNB, Iowa City, IA 52242, USA

5. The University of Iowa, Carver College of Medicine, 1-103 MEB, Iowa City, IA 52242, USA

Publisher

Future Medicine Ltd

Subject

Pharmacology,Molecular Medicine,General Medicine

Link

https://www.futuremedicine.com/doi/pdf/10.2217/pme.13.48

Reference20 articles.

1. Patient-centered medicine and patient-oriented research: improving health outcomes for individual patients

2. National Research Council (US) committee on a framework for developing a new taxonomy of disease.Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease.The National Academies Press, Washington, DC, USA (2011).

3. Technical report: ethical and policy issues in genetic testing and screening of children

4. Nothing About Us Without Us: Guidelines for Genetic Testing

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