Patient and caregiver experiences at a specialized primary care center for autistic adults

Author:

Hand Brittany N1ORCID,Coury Daniel L23ORCID,Darragh Amy R4,White Susan5ORCID,Moffatt-Bruce Susan6ORCID,Harris Lauren1ORCID,Longo Anne1,Gilmore Daniel1,Garvin Jennifer H7ORCID

Affiliation:

1. School of Health and Rehabilitation Sciences, The Ohio State University, OH 43210, USA

2. Developmental Behavioral Pediatrics, Nationwide Children’s Hospital, OH 43205, USA

3. College of Medicine, The Ohio State University, OH 43210, USA

4. Division of Occupational Therapy, The Ohio State University, OH 43210, USA

5. The Ohio State University Wexner Medical Center, OH 43210, USA

6. Royal College of Physicians & Surgeons in Canada, Ottawa ON K1S 5N8, Canada

7. Division of Health Information Management and Systems, The Ohio State University, OH 43210, USA

Abstract

Background: Little is known about the extent to which patient-centered medical homes meet the needs of autistic adults. Materials & methods: We conducted a cross-sectional survey of autistic adult patients (n = 47) and caregivers of autistic adult patients (n = 66) receiving care through one patient-centered medical home specifically designed to meet the needs of this population. We performed post hoc comparisons of our results to previously published data from a national sample of autistic adults. Results: Participants reported high levels of satisfaction with care, frequent preventive healthcare use and few unmet healthcare needs. Autistic adults in our sample reported significantly higher satisfaction and fewer unmet healthcare needs. Conclusion: A patient-centered medical home tailored to the needs of autistic adults is a promising approach to healthcare delivery for meeting this population’s needs.

Publisher

Future Medicine Ltd

Subject

Health Policy

Reference30 articles.

1. Interagency Autism Coordinating Committee (IACC). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan for autism spectrum disorder. USDepartment of Health and Human Services Interagency Autism Coordinating Committee, (2017). https://iacc.hhs.gov/publications/strategic-plan/2017/strategic_plan_2017.pdf

2. Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults

3. The health status of adults on the autism spectrum

4. Premature mortality in autism spectrum disorder

5. Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group

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