Impact on interpersonal relationships among patients with multiple sclerosis and their partners

Author:

Herbert Leslie Beth1,Zerkowski Kristine2,O’Brien Sarah3,Leonard Kathryn Volpicelli2,Bhowmick Amrita24

Affiliation:

1. Research & Analytics, Health Union LLC, 1 International Plaza Dr #550, Philadelphia, PA, USA

2. Community Development, Health Union LLC, 1 International Plaza Dr #550, Philadelphia, PA, USA

3. Contractor, Health Union LLC, Chapel Hill, NC, USA

4. Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina School of Medicine, Chapel Hill, NC, USA

Abstract

Aim: To determine how the diagnosis and symptoms of multiple sclerosis (MS) impact interpersonal relationships. Participants & methods: Data were obtained from a convenience sample of 1010 individuals with MS responding to an online survey; responses were compared with results of a fibromyalgia survey. Results: MS participants had few negative perceptions of relationships with romantic partners/children/close friends but described the impact of fatigue and limited mobility as feelings of being not well understood by others, burdensome and isolated. Conclusion: Despite increasing disability/pain severity, most patients with MS reported high satisfaction levels and few negative perceptions of relationships with romantic partners/children/close friends. Future research should focus on identifying effective coping strategies used by satisfied couples and improving access to high-quality relationship-enrichment programs.

Publisher

Future Medicine Ltd

Subject

Neurology (clinical)

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