RuSIDA: the online resource for the collection, storage and analysis of epidemiologicel, demographic and clinical laboratory data of patients-Reference-Cited by-同舟云学术

RuSIDA: the online resource for the collection, storage and analysis of epidemiologicel, demographic and clinical laboratory data of patients

Published:2023-01-24 Issue:4 Volume:14 Page:49-58
ISSN:2077-9828
Container-title:HIV Infection and Immunosuppressive Disorders
language:
Short-container-title:VIČ-infekc. immunosupr.

Author:

Kuznetsova A. I.¹^ORCID,Bobkov V. G.¹^ORCID,Lebedev A. V.¹^ORCID,Tumanov A. S.¹^ORCID,Kim K. V.¹^ORCID,Chaikovskaia N. E.²^ORCID,Chudnovsky A. G.³^ORCID,Charushin A. N.⁴^ORCID,Pronin A. Yu.⁵^ORCID,Drobyshevskaya Е. V.⁵^ORCID,Shemshura A. В.⁶^ORCID,Turkin A. V.⁷^ORCID,Ilyina Е. A.⁸^ORCID,Shevchenko V. V.⁸^ORCID,Krylova T. V.⁹^ORCID,Kirillova I. L.⁹^ORCID,Begma E. N.¹⁰^ORCID,Bogatyreva T. I.¹⁰^ORCID,Prodanova K. G.¹⁰^ORCID,Sklyar L. F.¹¹^ORCID,Kazennova Е. V.¹^ORCID,Bobkova M. R.¹^ORCID

Affiliation:

1. N. F. Gamaleya NRCEM

2. RGConsulting LLC

3. Medical Joint Stock Insurance Company (JSC MAKS-M)

4. Almond Consulting LLC

5. Center for the Prevention and Control of AIDS and Infectious Diseases

6. Clinical Center for the Prevention and Control of AIDS

7. Vologda Regional Center for the Prevention and Control of AIDS and Infectious Diseases

8. Altai Regional Center for the Prevention and Control of AIDS and Infectious Disease

9. Vologda Regional Clinical Hospital No. 2, Center of AIDS Prevention and Control

10. Center for the Prevention and Control of AIDS

11. Moscow Regional Research Clinical Institute named after M. F. Vladimirsky

Abstract

Objective on creating a universal tool with Russian user interface (UI) to systematically collect and store epidemiological-demographic and clinical-laboratory data of patients with the possibility of their structured export for subsequent multifaceted analysis.Materials and methods. When creating an online tool, the solutions of European colleagues used to conduct a multicenter study of EuroSIDA, including a list, algorithms for collecting, storing and exchanging data, were used as a model.Research and discussion. A Russian UI online resource RuSIDA has been developed, hosted on the website http://hivgen.org/, designed to fulfill the tasks above. The tool requires authorized access and has been successfully tested on data collection from HIV-infected patients at several AIDS centers in the Russian Federation.Conclusion. The developed online resource RuSIDA can be used to maintain medical electronic records, intralaboratory databases, as well as to conduct epidemiological monitoring of various nosologies and multicenter scientific studies.

Publisher

Baltic Medical Education Center

Subject

Infectious Diseases,Public Health, Environmental and Occupational Health,Immunology

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