Occupational Therapy’s Role in Improving the Quality of Life for Persons With Cerebral Palsy

Author:

Kibele Alice1

Affiliation:

1. Alice Kibele, MS, OTR, is Director of Occupational Therapy, Children’s Hospital at Stanford, Palo Alto, California. (Mailing address: 520 Sand Hill Road, Palo Alto, California 94304.)

Abstract

Abstract Adults with cerebral palsy need assistance to maximize their capabilities, interact with others, and achieve independence. They experience difficulty communicating their needs to successfully obtain medical/rehabilitation and independent living services, which are necessary to achieve independent living. Knowledge of the experience of such clients can help occupational therapists to better serve them. This study, which used a case study design, presents data collected during more than 80 hours of guided interviews with 5 study participants. A data analysis of the participants’ experiences showed recurring themes of the disability as the enemy, the importance of attitude, dependence versus independence, and the significance of purposeful activity. The participants’ experiences with therapists and independent living skills agencies are presented, as is an examination of the medical/rehabilitation and independent living models.

Publisher

AOTA Press

Subject

Occupational Therapy

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1. Cerebral Palsy;Care of Adults with Chronic Childhood Conditions;2024

2. Pain in individuals with intellectual disabilities;Clinical Pain Management;2022-03-09

3. Pain in children with cerebral palsy – adolescent siblings’ awareness of pain and perceived influence on their family;European Journal of Physiotherapy;2018-10-08

4. The relationship between the spasticity-related pain and the quality of life about the cerebral palsy in China;International Physical Medicine & Rehabilitation Journal;2018-03-02

5. Cerebral Palsy;Care of Adults with Chronic Childhood Conditions;2016

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