Goal-Directed Personalized Upper Limb Intensive Therapy (PULIT) for Children With Hemiparesis: A Retrospective Analysis

Author:

Bono Géraldine L. P.1,Achermann Prisca2,Rückriem Bärbel3,Lieber Jan4,van Hedel Hubertus J. A.5

Affiliation:

1. Géraldine L. P. Bono, MD, is Doctoral Candidate, Swiss Children’s Rehab, University Children’s Hospital Zurich, Affoltern am Albis, Switzerland, and Resident Physician, Department of Pediatrics, University Children’s Hospital Zurich, Zurich, Switzerland.

2. Prisca Achermann, OT, is Occupational Therapist, Swiss Children’s Rehab, University Children’s Hospital Zurich, Affoltern am Albis, Switzerland.

3. Bärbel Rückriem, MScOT, is Head of Occupational Therapy, Swiss Children’s Rehab, University Children’s Hospital Zurich, Affoltern am Albis, Switzerland.

4. Jan Lieber, MScOT, is Deputy Head of Occupational Therapy, Swiss Children’s Rehab, University Children’s Hospital Zurich, Affoltern am Albis, Switzerland.

5. Hubertus J. A. van Hedel, PhD, PT, is Head of Research, Swiss Children’s Rehab, University Children’s Hospital Zurich, Affoltern am Albis, Switzerland, and Professor of Neurorehabilitation, Children’s Research Center, University Children’s Hospital Zurich, University of Zurich, Zurich, Switzerland; hubertus.vanhedel@kispi.uzh.ch

Abstract

Abstract Importance: Children with hemiparesis experience limitations in activities of daily living (ADLs) as a result of upper limb impairments. To address these limitations, we developed a group-based Personalized Upper Limb Intensive Therapy (PULIT) program combining modified constraint-induced movement therapy, bimanual intensive therapy, and exergame-based robotics. Objective: To determine the effectiveness of PULIT in helping children with upper limb impairments achieve individually set goals and enable transfer of the attained motor skills into ADLs. Design: Retrospective analysis. Setting: Day camp at a pediatric rehabilitation clinic in Switzerland. Participants: Twenty-three children with upper limb impairment (unilateral cerebral palsy, n = 16; acquired brain injury, n = 7); 13 boys and 10 girls (M age = 7 yr, 8 mo, SD = 2 yr, 1 mo; Manual Ability Classification System Level I–IV). Intervention: Thirty hours of PULIT over the course of 8 days. Outcomes and Measures: Goal attainment scaling (GAS) was assessed on the first and last day of intervention. The Canadian Occupational Performance Measure (COPM) and dexterity tests, such as the Box and Block Test (BBT), were administered 3 wk before and 3 wk after the intervention. Results: Total goal achievement was 85.7%. GAS, parent- and child-rated COPM Performance and Satisfaction, and the BBT of the affected and dominant upper limb improved significantly. Conclusions and Relevance: PULIT effectively increases children’s dexterity of the impaired and dominant upper limb, improves ADL performance, and achieves individual goals. This retrospective analysis could serve as a basis for a future randomized trial. What This Article Adds: This article informs occupational therapy practitioners about a therapy program that includes conventional and rehabilitation technology interventions and enables children with hemiparesis of the upper limb to improve relevant ADL tasks in 8 days’ time.

Funder

Mäxi Foundation, Zurich, Switzerland

J&K Wonderland Foundation, Steinhausen, Switzerland

Publisher

AOTA Press

Subject

Occupational Therapy

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