Treatment adherence: the experience of adolescents with HIV/AIDS

Author:

Kourrouski Maria Fernanda Cabral1,Lima Regina Aparecida Garcia de2

Affiliation:

1. Universidade de São Paulo, Brazil

2. Universidade de São Paulo; WHO Collaborating Centre for Nursing Research Development, Brazil

Abstract

Living with a chronic condition is difficult at any stage of life, especially when considering HIV/AIDS, a stigmatized condition that elicits so much discrimination and which may become an aggravating factor when it occurs during adolescence. This study aimed to understand the experience of adolescents with HIV/AIDS concerning medication adherence. This is a descriptive study with a qualitative approach. Nine adolescents aged between 12 and 18 years and six caregivers participated in the study. The organization of data focused on positive and negative aspects related to adherence. The results showed that adolescents have difficulties in medication adherence especially due to their side effects; they try to normalize their lives in such a way that stigma and discrimination do not compromise their quality of life and treatment adherence. Recommendations to encourage treatment adherence are presented.

Publisher

FapUNIFESP (SciELO)

Subject

General Nursing

Reference19 articles.

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2. AIDS as chronic illness: psychosocial implications;Siegel K;AIDS,2002

3. Boletim Epidemiológico AIDST,2007

4. Repensando as práticas e dilemas no cotidiano de atenção à saúde de crianças e jovens vivendo com HIV/AIDS.;Moreira MCN;Divulgação em Saúde para Debate,2003

5. Adherence to antiretroviral therapy for pediatric HIV infection: review of the literature and recommendations for research;Steele R;Clin Child Fam Psychol Rev,2003

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