The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome

Author:

Ronca Roberta Pasqualucci1ORCID,Rocha Marina Monzani2ORCID,Campos-Pozzi Denise3ORCID,Cymrot Raquel2ORCID,Blascovi-Assis Silvana Maria2ORCID

Affiliation:

1. Universidade Paulista, Brasil

2. Universidade Presbiteriana Mackenzie, Brasil

3. Faculdade Anhanguera de Campinas, Brasil

Abstract

Abstract Objective: The objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome. Methods: Cross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria. Results: It was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference. Conclusion: It was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome.

Publisher

FapUNIFESP (SciELO)

Subject

General Psychology

Reference23 articles.

1. Evaluation of quality of life in mothers of children with Down syndrome;Abassi S.;Journal of Practice in Clinical Psychology,2017

2. Caring for the carer: quality of life and burden off male caregivers;Araújo M. G. O.;Revista Brasileira de Enfermagem,2019

3. Critério de classificação econômica Brasil,2015

4. Quality of life and burden of caregivers of children and adolescents with disabilities;Barros A. L. O.;Special Care Dentistry,2019

5. Sobrecarga dos cuidadores de crianças e adolescentes com síndrome de Down;Barros A. L. O.;Ciência & Saúde Coletiva,2017

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