Affiliation:
1. Universidade Federal do Rio de Janeiro, Brazil
2. Universidade Federal da Paraíba, Brazil
Abstract
ABSTRACT Objectives: to identify aspects that can influence the types of bonds developed in the social support network of family members of children with special health care needs. Methods: qualitative research conducted through interviews with 15 family members/guardians in the city of Rio de Janeiro, from January to February 2020. Sanicola’s theoretical-methodological framework and Bardin’s thematic analysis technique were used. Results: social distancing, lack of responsibility for coordinating care, lack of supplies and lack of individualized care were weaknesses found in the families’ social relationships. However, the bonds were strengthened by the relationship of familiarity and availability of professionals in the care of children with special health needs. Final Considerations: understanding the configuration of primary and secondary social networks and the types of support offered can improve the care of children and strengthen bonds that provide security for families.
Reference26 articles.
1. Family caregivers articulating the social network of a child with special health care needs;Cabral IE;Rev Bras Enferm,2015
2. Psychosocial factors in children and youth with special health care needs and their families;Mattson G;Pediatrics,2019
3. National Survey of Children’s Health 2018/19,2019
4. Accessibility of children with special health needs to the health care network;Neves ET;Rev Bras Enferm,2019
5. Indicadores Sociais Municipais: uma análise dos resultados do universo do censo demográfico 2010,2011
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