Affiliation:
1. Universidade Regional do Cariri, Brazil
2. Universidade Federal do Cariri, Brazil
Abstract
ABSTRACT Objectives: to identify the outlining of therapeutic itineraries of families of children with disabilities in the professional health care subsystem. Methods: qualitative research carried out in two specialized services in the state of Ceará, with 41 family members interviewed using the life path technique and reports submitted to descending hierarchical classification and similitude analysis, with the help of the IRaMuTeQ software and the theoretical framework of health care systems. Results: the classes described the families’ itineraries in five paths, related to faith, support structures, medical behaviors, professionals, and health services. The professional subsystem stood out as deficient in outlining the therapeutic itinerary for access to health care for children with disabilities, without promoting integration between services in the Care Network. Final considerations: the families’ therapeutic itineraries showed homogeneous discourse with themes related to the care of professionals and spiritual aspects.
Reference29 articles.
1. Humanization of health and social inclusion in caring for people with physical disabilities;Missel A;Trab Educ Saúde,2017
2. Children with special health needs and family: implications for Nursing;Figueiredo SV;Rev Bras Enferm,2016
3. Children and adolescents with cerebral palsy: analysis of care longetudinality;Santos KH;Texto Contexto Enferm,2017
4. Experiences in the therapeutic itineraries of mothers of children with intellectual disabilities;Cerqueira MM;Ciênc Saúde Coletiva,2016
5. The unifying concept of illness behavior;Sirri L;Psychother Psychosom,2013