Affiliation:
1. Universidade Federal do Paraná, Brazil
2. Universidade Estadual Vale do Acaraú, Brazil
Abstract
ABSTRACT Objective: to identify the information demands of families of children with Autism Spectrum Disorder. Method: this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization. Results: it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations. Final considerations: information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
Reference44 articles.
1. Prevalence of autism spectrum disorder among children aged 8 years: autism and developmental disabilities monitoring network, 11 Sites, United States, 2016;Maenner MJ;MMWR Surveill Summ.,2020
2. O desenvolvimento do autismo social, cognitivo, linguístico, sensório-motor e perspectivas biológicas;Whitmann TL,2015
3. Diretrizes de Atenção à Reabilitação da Pessoa com Transtornos do Espectro do Autismo (TEA),2014
4. From ‘parent’ to ‘expert’: how parents of children with autism spectrum disorder make decisions about which intervention approaches to access;Edwards AG;J Autism Dev Disord.,2018
5. Engaging with disability services: experiences of families from Chinese backgrounds in Sydney;Liu Y;Aust Soc Work.,2017
Cited by
5 articles.
订阅此论文施引文献
订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献