Affiliation:
1. Universidade Federal de Pernambuco, Brazil
Abstract
ABSTRACT Objective: to understand the experiences of family caregivers of children with Primary Immunodeficiency in view of care demands. Methods: a qualitative research. Data collection was subsidized by an open interview with five family caregivers, and the data were analyzed using the Bardin Content Analysis technique, thematic modality. The Callista Roy’s Adaptation Model of Nursing was used to interpret the data. Results: from participants’ reports, the following categories emerged: Maternity: facing adversity; Remodeling of daily life; The Social Support Network resource. Final considerations: family caregivers experience several feelings such as anguish and low self-esteem due to the fear of losing their child and the routine of illnesses and hospitalizations, in addition to needs that are often not reached due to incompatibility with the family budget. The Social Support Network is strengthened for most caregivers, playing an essential role as a coping strategy for caregivers.
Reference29 articles.
1. Associação da Imunodeficiência Primária com lúpus eritematoso sistêmico revisão de literatura e as lições aprendidas pela Divisão de Reumatologia de um hospital universitário terciário em São Paulo;Errante PR;Rev Bras Reumatol,2016
2. Gammaglobulin for primary immunodeficiency: when should it be used? when should it be used?;Roxo-Jr P.;Rev Med(Ribeirão Preto),2014
3. Estratégias de famílias no cuidado a crianças portadoras de doenças crônicas;Salvador MS;Texto Contexto Enferm,2015
4. Teoria da Enfermagem: o Modelo de Adaptação de Roy;Roy C,2000
5. Da pesquisa à prática de enfermagem aplicando o modelo de adaptação de Roy;Coelho SMS;Esc Anna Nery,2011
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