Sense of mastery in caregivers of people living with dementia: translation and cultural adaptation of the Pearlin Mastery Scale

Author:

Barbosa Gustavo Carrijo1ORCID,Ottaviani Ana Carolina1ORCID,Monteiro Diana Quirino1ORCID,Campos Camila Rafael Ferreira1ORCID,Cruz Keila Cristianne Trindade da2ORCID,Alves Ludmyla Caroline de Souza1ORCID,Corrêa Larissa1ORCID,Rocha Luana Aparecida1ORCID,Martins Gabriela1ORCID,Melo Beatriz Rodrigues de Souza1ORCID,Barham Elizabeth Joan1ORCID,Pavarini Sofia Cristina Iost3ORCID,Orlandi Fabiana de Souza3ORCID,Gratão Aline Cristina Martins3ORCID

Affiliation:

1. Universidade Federal de São Carlos, Brazil

2. Universidade de Brasília, Brazil

3. Universidade Federal de São Carlos, Brazil; Universidade Federal de São Carlos, Brazil

Abstract

ABSTRACT The sense of mastery is conceptualized as a positive aspect of care targeted at people living with dementia, a coping mechanism to reduce burden, and may represent a protective factor for caregivers’ mental and physical health. Objective: To translate and culturally adapt the Pearlin Mastery Scale for Brazil. Methods: A methodological study was conducted at the Federal University of São Carlos in which the initial translation stages were followed; synthesis; back-translation; review by the committee of judges by analyzing the Content Validity Index (CVI); and test of the pre-final version. Results: Two specialists translated the scale into Brazilian Portuguese and defined a consensus version with the researchers. Subsequently, another two specialists back-translated the consensus version, which was reviewed by three judges who are PhDs in the area, considering all scale items as very equivalent (CVI=1.0), and maintaining them in the pre-final version of the instrument. This was tested in a first group of caregivers for them to point out adjustments. The suggestions were accepted by modifying three items and, afterward, the scale was tested in a second group, which did not present difficulties answering the instrument. Conclusion: The Pearlin Mastery Scale was translated and culturally adapted for Brazil, showing equivalence. However, future psychometric analyses of the instrument are required to make it available for use in this population.

Publisher

FapUNIFESP (SciELO)

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