Efficacy of iSupport-Brasil for unpaid caregivers of people living with dementia: protocol for a randomized and controlled clinical trial

Author:

Gratão Aline Cristina Martins1ORCID,Cardoso Anabel Machado2ORCID,Ottaviani Ana Carolina2ORCID,Campos Camila Rafael Ferreira2ORCID,Oliveira Déborah Cristina de3ORCID,Monteiro Diana Quirino2ORCID,Barham Elizabeth Joan1ORCID,Orlandi Fabiana de Souza1ORCID,Barbosa Gustavo Carrijo2ORCID,Cruz Keila Cristianne Trindade da4ORCID,Corrêa Larissa2ORCID,Rocha Luana Aparecida da2ORCID,Alves Ludmyla Caroline de Souza2ORCID,Maciel Luiza Barros2ORCID,Nico Lucélia Silva5ORCID,Hoffmann Maria Cristina Corrêa Lopes5ORCID,Pavarini Sofia Cristina Iost1ORCID

Affiliation:

1. Universidade Federal de São Carlos, Brazil; Universidade Federal de São Carlos, Brazil

2. Universidade Federal de São Carlos, Brazil

3. Universidad Andrés Bello, Chile; Millenium Institute for Care Research, Chile

4. Universidade de Brasília, Brazil

5. Ministério da Saúde, Brazil

Abstract

ABSTRACT. Unpaid caregivers of people living with dementia tend to suffer mental health problems as a result of the negative effects associated with the care tasks. Thus, psychosocial interventions for this population group are necessary. iSupport is an online support program for caregivers that was created by the World Health Organization. Objective: To describe the design of a randomized clinical trial to measure the efficacy of the iSupport-Brasil version on caregivers’ mental health and well-being. Methods: The participants will be randomized into Intervention Group (IG) (n=195) and Control Group (CG) (n=195). For three months, the IG will access the iSupport-Brasil platform, the CG will enter the electronic page of the Brazilian Alzheimer’s Association, and both groups will be emailed the preliminary version of the “Guia de cuidados para a pessoa idosa” e-book (a guide to providing care to the elderly) from the Ministry of Health. The data will be collected at three moments: baseline, and three and six months after the beginning of the intervention. Results: It is expected that it will be possible to provide diverse validity evidence about iSupport-Brasil as an online and free intervention alternative, as a preventive means and as a way to promote mental health among caregivers of people living with dementia. Conclusion: Through the evaluation protocol of this randomized clinical trial on the effects of the iSupport-Brasil program, it may become a reference for countries that plan to adapt and improve the iSupport program using digital health solutions.

Publisher

FapUNIFESP (SciELO)

Subject

Cognitive Neuroscience,Geriatrics and Gerontology,Neurology (clinical),Neurology,Sensory Systems

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