Affiliation:
1. Universidade de Fortaleza (Unifor), Brazil
2. Unifor, Brasil
3. Universidade de Brasília, Brazil
Abstract
Abstract This article describes the development of a participatory methodological study involving autistic people with varying levels of support needs in the design and validation of an instrument devised to assess the effects of social isolation during the COVID-19 pandemic and the strategies used to cope with the crisis. The development of the instrument involved the following stages: Definition of the domains to be assessed (researchers in consultation with experts and autistic people); Design of the instrument (researchers with the co-participation of autistic people); Validation of the instrument (by experts and autistic people, led by the researchers); and Final approval of the instrument (co-participation between researchers and autistic people). In addition to making the instrument more robust, the participation of autistic people in the design and application of the instrument reinforced the importance of strategies to include autistic people in research as both study participants and co-researchers.
Subject
Public Health, Environmental and Occupational Health,Health Policy
Reference33 articles.
1. Science, politique et sciences sociales;Bourdieu P;Actes Rech Sci Soc,2002
2. Da invisibilidade à epidemia a construção narrativa do autismo na mídia impressa brasileira;Rios C;Interface (Botucatu),2015
3. Neurodiversity An insider's perspective;Den Houting J;Autism,2019
4. Pandemia, isolamento social e colapso global;Bittencourt RN;Rev Esp Acad,2020
5. Oportunidades de aprendizagem com apoio da Comunicação Aumentativa e Alternativa em tempos de COVID-19;Bonotto R;Rev Ibero-Am Estud Educ,2020