Affiliation:
1. Universidade Federal da Paraíba, Brazil
Abstract
ABSTRACT Objective: To build a specialized nursing terminology for the care of children and adolescents with epidermolysis bullosa. Method: Methodological, documentary study, built between the months of January to December 2021, in partnership with the ICNP® Center, in João Pessoa - Brazil. Data were analyzed using the PorOnto tool and the following theoretical methodological references: the International Classification for Nursing Practice 2019/2020, and human mapping following ISO/TR 12300:2016 and the term validation method. Results: The validation process with judges resulted in 480 terms for children and adolescents with epidermolysis bullosa, which were submitted to mapping, resulting in 207 constant ICNP® terms and 273 non-constant ICNP® terms. Conclusion: a higher number of non-constant terms is evidenced, which can be justified by the peculiarity of the disease and specific care with children and adolescents. The construction of terminology strengthens the development of diagnoses, outcomes, and nursing intervention.
Reference30 articles.
1. Diagnosis and care of the newborn with Epidermolysis Bullosa;Lucky AW;Neo Reviews,2021
2. Debra Brasil. Cadastro das pessoas com epidermólise bolhosa [Internet],2022
3. Inherited epidermolysis bullosa: update on the clinical and genetic aspects;Mariath LM;An Bras Dermatol,2020
4. Epidermolysis bullosa;Bardhan A;Nat Rev Dis Primers,2020
5. Linguagem profissional e domínio da enfermagem;Garcia TR;Texto Contexto Enferm,2019