Affiliation:
1. Universidade Federal de Alagoas, Brasil
Abstract
ABSTRACT Objective To understand the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis. Method Qualitative study based on assumptions of Martin Heidegger Existential Phenomenology, with 12 family caregivers of the person with Amyotrophic Lateral Sclerosis, in Alagoas. The testimonies were obtained from June 2019 to March 2020 and analyzed, categorized, and discussed based on the theoretical-philosophical framework adopted and thematic literature. Results Phenomenological sense of the existential transformations of the family caregiver of a person living with Amyotrophic Lateral Sclerosis, unveiled with the categories: Being the caregiver of the person living with ALS; Being responsible for decision making; Resignifying the existence in view of the possibility of loss; Spirituality influencing the transformation process. Conclusions The family caregiver has an appropriate life due to the inherent vicissitudes of the disease, which provides moving moments that lead him to rethink his existence and to value life.
Reference20 articles.
1. Fiberoptic endoscopic findings of oropharyngeal swallowing of different food consistencies in Amyotrophic Lateral Sclerosis;Gozzer MM;CoDAS,2020
2. Meditação mindfulness e esclerose lateral amiotrófica (ELA): uma revisão de literatura;Guilherme IT;Psicol Saúde Doenças,2018
3. Família contemporânea e saúde: significados, práticas e políticas públicas;Moura MMD;Cad Saúde Pública,2011
4. Aplicação do Modelo Calgary de Avaliação Familiar no contexto hospitalar e na atenção primária à saúde: revisão integrativa;Monteiro GRS;Aquichan,2016
5. Experiencia del cuidador familiar con los cuidados paliativos y al final de la vida;Leguia LAS;Index Enferm,2019
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