MUTUAL HELP GROUP FOR FAMILY MEMBERS OF OLDER ADULTS WITH DEMENTIA: UNVEILING PERSPECTIVES

Abstract

ABSTRACT Objective: to understanding the reasons why members of a Mutual Help Group for family caregivers of older adults with Dementia participate in it and to identify the difficulties and benefits of such participation. Method: a qualitative exploratory descriptive study with data collected through observation and interviews with nine family caregivers, five family volunteers and five health professionals from the group. Data analysis involved content analysis and theoretical support of the Cultural Care Theory. Results: the respondents pointed out their reasons for seeking the group and the benefits they perceived from participating in it. However, difficulties to participate continuously in the group faced by both family caregivers and volunteers were also evidenced. Nontheless, all of them valued the possibility of being part of this group. Conclusion: the Mutual Help Group has proven to be an important supportive strategy for family caregivers of older adults with dementia, however, much remains to be done in order to make this strategy feasible for all families. Among the difficulties identified for maintaining the group are voluntary work and a way to attract more people to this work.