Abstract
ABSTRACT The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.
Reference31 articles.
1. Experiência de cuidado pelo homem na vivência familiar de adoecimento crônico;Musquim CA,2013
2. (Re)Organização no cotidiano familiar devido às repercussões da condição crônica por câncer;Mufato LF;Cienc Cuid Saude,2012
3. The adolescent with a chronic condition: epidemiology, developmental issues and health care provision,2007
4. Family routines and rituals when a parent has cancer;Buchbinde M;Fam Syst Health,2009
5. Family caregiving in chronic illness: a young person's experience;Almeida KBB;Rev Min Enferm,2014
Cited by
9 articles.
订阅此论文施引文献
订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献