Importance of the National Childhood Cancer Registry in the field of paediatric oncology care

Author:

Garami Miklós1,Schuler Dezső1,Jakab Zsuzsanna1

Affiliation:

1. Semmelweis Egyetem, Általános Orvostudományi Kar II. Gyermekgyógyászati Klinika Budapest Tűzoltó u. 7–9. 1094

Abstract

National Childhood Cancer Registry has been operated since 1971 by the Hungarian Paediatric Oncology Network. This Registry collects data on epidemiology, treatment modalities and effectiveness, as well as late follow-up of childhood cancers. An internet-based paediatric cancer registration and communication system for the Hungarian Paediatric Oncology Network has been introduced in April, 2010. The National Childhood Cancer Registry contains data of all paediatric cancer patients (0–18 yrs) who have insurance covered by the Hungarian Social Security Card. Creation (1971) and operation of the National Childhood Cancer Registry have been very important steps in the field of childhood oncology to evaluate the efficiency of paediatric oncology treatments as well as maximize return on medical investment. Orv. Hetil., 2014, 155(19), 732–739.

Publisher

Akademiai Kiado Zrt.

Subject

General Medicine

Reference14 articles.

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3. Schuler, D.: Paediatric oncology in Hungary. [A gyermekonkológia helyzete Magyarországon.] Orv. Hetil., 2012, 153(21), 803–810. [Hungarian]

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5. Oeffinger, K. C., Mertens, A. C., Sklar, C. A., et al.: Childhood cancer survivor study. Chronic health conditions in adult survivors of childhood cancer. N. Engl. J. Med., 2006, 355(15), 1572–1582.

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