Being a Parent of Children with Disabilities during the COVID-19 Pandemic: Multi-Method Study of Health, Social Life, and Occupational Situation

Author:

Fortin-Bédard Noémie12ORCID,Ladry Naomie-Jade1ORCID,Routhier François12ORCID,Lettre Josiane1ORCID,Bouchard David1,Ouellet Béatrice12ORCID,Grandisson Marie12,Best Krista L.12ORCID,Bussières Ève-Line13,Baron Marie4,LeBlanc Annie45,Lamontagne Marie-Eve12ORCID

Affiliation:

1. Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada

2. Department of Rehabilitation, Université Laval, Quebec, QC G1V 0A6, Canada

3. Department of Psychology, Université du Québec à Trois-Rivières, Trois-Rivieres, QC G8Z 4M3, Canada

4. VITAM Research Center on Sustainable Health, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1J 2G1, Canada

5. Department of Family and Emergency Medicine, Université Laval, Quebec, QC G1V 0A6, Canada

Abstract

Parents of children with disabilities face challenges in their daily lives, but little is known about their experience of the COVID-19 pandemic. The objective of the study was to explore the experiences of parents of children with disabilities during the COVID-19 pandemic in Quebec, Canada. Forty parents of children with disabilities from Quebec, Canada (mean [SD] age: 41.2 [6.7]; 93% women) were selected from the Ma Vie et la pandémie (MAVIPAN) study. All 40 parents completed the MAVIPAN online questionnaires including the Depression, Anxiety and Stress Scale (DASS-21), Warwick–Edinburgh Mental Wellbeing short 7-item scale (WEMWBS), Social Provisions Scale-10 item (SPS-10), and the UCLA Loneliness Scale (UCLA-LS). A multi-method analysis was used to summarize questionnaires and thematically explore parents’ experiences. Parents reported deterioration in their mental (50.0%) and physical (27.5%) health, with moderate levels of depression, stress, and anxiety, yet moderately positive well-being. Additional experiences included reduction in available supports (71.4%) and feelings of social isolation (51.4%). Our results highlighted reduced mental and physical health, limited and modified access to certain services, and reduction of social supports for some parents of children with disabilities. Health professionals, policymakers, and governments should be mindful of these challenges experienced by parents of children with disabilities.

Funder

Centre for interdisciplinary research in rehabilitation and social integration

Quebec Integrated University Health and Social Services Center

CIUSSS de la Capitale-Nationale

Publisher

MDPI AG

Subject

Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health

Reference46 articles.

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