Health Care on Rare Diseases

Author:

Cortés-Martín JonathanORCID,Sánchez-García Juan CarlosORCID,Rodríguez-Blanque Raquel

Abstract

Rare diseases are a subject of great scientific and health interest that has been on the rise in recent years [...]

Publisher

MDPI AG

Subject

Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health

Reference11 articles.

1. EURORDIRS (2022, July 30). ¿Qué es una Enfermedad Rara?. Available online: https://www.eurordis.org/es/content/\T1\textquestiondownque-es-una-enfermedad-rara.

2. ORPHANET (2022, July 30). Enfermedades Raras. Available online: https://www.orpha.net/consor/cgi-bin/Disease.php?lng=ES.

3. FEDER (2022, July 30). Enfermedades Raras. Available online: https://www.enfermedades-raras.org/enfermedades-raras/conoce-mas-sobre-er.

4. Daily life changes and adaptations investigated in 154 families with a child suffering from a rare disability at a public centre forrare diseases in Northern Italy;Silibello;Ital. J. Pediatr.,2016

5. Health information behaviour of rare disease patients: Seeking, finding and sharing health information;Health Info. Libr. J.,2019

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