Affiliation:
1. African Palliative Care Association, Kampala P.O. Box 72518, Uganda
2. Department of Palliative Care and Rehabilitation, Cicely Saunders Institute King’s College London, London SE5 9RS, UK
3. Formerly-Department of Clinical Services, Hospice Africa Uganda, Kampala P.O. Box 7757, Uganda
4. National Institutes of Health, Clinical Center, Bethesda, MD 20892, USA
Abstract
Background: This study aimed to explore the meaning of healing from the perspective of adult patients with advanced cancer. Methods: We conducted a secondary analysis of data from a primary study which used a cognitive interview approach to assess the face and content validity of a spiritual and psychological healing measure (NIH-HEALS). This analysis focused on responses to the question, “What does the term ‘healing’ mean to you?” Data were de-identified, transcribed verbatim, and imported in NVivo for thematic analysis in line with interpretive phenomenological methods. Results: Thirty-five adults with advanced cancer participated in the study. We identified nine major themes: acceptance, surrender, faith, hope, peace, freedom from suffering (e.g., pain, problems, or other bothersome factors), overcoming/transcending disease, positive emotions (e.g., happiness), recovery from illness or disease. One participant discussed healing as synonymous with death, and two associated it with social relations and social support. Conclusion: Themes from patients’ responses suggest subjective and varied definitions of healing which encompass physical, social, spiritual, and psychological domains of well-being, distinct from the physical cure of disease. Clinicians should adopt a holistic, person-centered approach to care, attending to bodily, psychosocial, spiritual, and emotional needs to help patients find meaning in their experiences, nourish resilience, and experience a sense of healing—as they define it.
Funder
National Institutes of Health Clinical Center
Subject
Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health
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