Centering Women of Color: Chronic Vulvovaginal Pain (CVVP) Communication

Author:

Adams Olivia R.12ORCID,Gesselman Amanda N.2,Bennett-Brown Margaret23ORCID

Affiliation:

1. Department of Gender, Sexuality, and Women’s Studies, University of Florida, Gainesville, FL 32611, USA

2. The Kinsey Institute, Indiana University, Bloomington, IN 47405, USA

3. College of Media & Communication, Texas Tech University, Lubbock, TX 79409, USA

Abstract

Background: Black and white women describe their chronic vulvar pain (CVVP) symptoms differently, indicating a patient–provider communication deficit. This may contribute to the diagnostic delay commonly reported by patients with CVVP and/or pelvic pain. Methods: A pilot study demonstrated CVVP terminology differences between women of color and white women. The present study (N = 488) includes a sample of predominantly cisgender women who identified their race/ethnicity as Black, Hispanic/Latinx, Native American/American Indian, and/or Asian. Participants reported how they describe their CVVP, their healthcare experiences, and characteristics of their diagnostic journey. Results: Descriptions of CVVP were not uniform. Instead, there was great variability in how women described their pain across racial/ethnic identities and pain contexts (e.g., sexual activity, menstrual product use, and pelvic exam). Some pain experiences and descriptors were associated with healthcare outcomes related to diagnostic delay. Conclusions: This study sheds light on the pain communication experiences of women of color with CVVP, an understudied population within the broader CVVP literature. By resisting white and non-white comparative methodologies, this study demonstrates the applicability of intersectionality principles to the study of CVVP and contributes to the existing literature regarding pain communication, race, and ethnicity.

Funder

Sexual Medicine Society of North America

Publisher

MDPI AG

Reference65 articles.

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