Parental Experiences of Distance Learning in Families with and without an Adolescent with ADHD/ASD: A Large Qualitative Survey Study

Author:

Thorell Lisa B.1ORCID,Klint Carlander Anna-Karin2,Demetry Youstina1,Marainen Lisa1,Nilsson Sarah1,Skoglund Charlotte3

Affiliation:

1. Department of Clinical Neuroscience, Karolinska Institutet, 17177 Stockholm, Sweden

2. Department of Clinical Sciences at Danderyd, Karolinska Institutet, 17177 Stockholm, Sweden

3. Department of Women and Child Health, Uppsala University, 75124 Uppsala, Sweden

Abstract

One of the greatest COVID-19-related challenges for children and their families was managing distance learning due to school closures. We also know from previous research that families with a child with a neurodevelopmental disorder such as ADHD or ASD were struggling more than others but also experienced some positive effects. However, few qualitative studies have been conducted. The present study therefore aimed to investigate parental experiences of the negative and positive effects of distance learning during the COVID-19 pandemic in a large sample of families with an adolescent with ADHD and/or ASD and a matched comparison group (n = 682). Data were collected through open-ended questions as part of a larger survey study. Five main themes with different sub-themes were identified for both negative and positive effects: (1) Teaching, (2) Social, (3) Support, (4) Child factors, and (5) Home environment. In addition, the main theme “Technical problems” was identified for negative effects. Families with a child with ADHD/ASD reported negative effects related to “Child factors” and “Support” more frequently than the controls, as well as negative effects related to some aspects of “Teaching” and “Technical problems”. Regarding positive effects, significant group differences were primarily found for the theme “Child factors”. These findings are discussed both in terms of how to best prepare for possible future pandemics, but also of how to best provide educational support for children with ADHD and/or ASD when schools are open.

Funder

Swedish Research Council for Health, Working Life and Welfare

Publisher

MDPI AG

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