The Role of Psychotherapy in the Care of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Author:

Grande Tilman1,Grande Bettina1,Gerner Patrick2,Hammer Sabine3,Stingl Michael4ORCID,Vink Mark5ORCID,Hughes Brian M.6ORCID

Affiliation:

1. Independent Researcher, 69117 Heidelberg, Germany

2. Klinik für Kinder und Jugendmedizin, Ortenau Klinikum, 77654 Offenburg, Germany

3. Gesundheit & Soziales, Hochschule Fresenius, 65510 Idstein, Germany

4. Facharztzentrum Votivpark, 1090 Wien, Austria

5. Independent Researcher, 1096 HZ Amsterdam, The Netherlands

6. School of Psychology, University of Galway, H91 TK33 Galway, Ireland

Abstract

Myalgic encephalomyelitis/chronic fatigue (ME/CFS) is a post-infectious, chronic disease that can lead to severe impairment and, even, total disability. Although the disease has been known for a long time, and has been coded in the ICD since 1969 (G93.3), medical research has not yet been able to reach a consensus regarding its physiological basis and how best to treat it. Against the background of these shortcomings, psychosomatic disease models have been developed and psychotherapeutic treatments have been derived from them, but their empirical testing has led to sobering results. According to the current state of research, psychotherapy and psychosomatic rehabilitation have no curative effect in the treatment of ME/CFS. Nevertheless, we see numerous patients in practices and outpatient clinics who suffer severely as a result of their illness and whose mental well-being and coping strategies would benefit from psychotherapeutic help. In this article, we outline a psychotherapeutic approach that serves this need, taking into account two basic characteristics of ME/CFS: firstly, the fact that ME/CFS is a physical illness and that curative treatment must therefore be physical; and secondly, the fact that post exertional malaise (PEM) is a cardinal symptom of ME/CFS and thus warrants tailored psychotherapeutic attention.

Funder

Tempi-Stifung

Fatigatio e.V

Deutsche Gesellschaft für ME/CFS e.V

Publisher

MDPI AG

Subject

General Medicine

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