Care Pathways in Rehabilitation for Children and Adolescents with Cerebral Palsy: Distinctiveness of the Adaptation to the Italian Context

Author:

Faccioli Silvia12ORCID,Sassi Silvia1,Pagliano Emanuela3ORCID,Maghini Cristina4,Perazza Silvia1,Siani Maria Francesca5ORCID,Sgherri Giada6,Farella Giuseppina Mariagrazia7,Foscan Maria3,Viganò Marta3,Sghedoni Silvia1,Bai Arianna Valeria6,Borelli Giulia1,Ferrari Adriano1

Affiliation:

1. Paediatric Rehabilitation Unit, Azienda Unità Sanitaria Locale IRCCS di Reggio Emilia, 42122 Reggio Emilia, Italy

2. PhD Program in Clinical and Experimental Medicine, Department of Biomedical, Metabolic and Neural Sciences, University of Modena and Reggio Emilia, 41121 Modena, Italy

3. Neurodevelopmental Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, 20133 Milan, Italy

4. Functional Rehabilitation Unit, IRCCS E. Medea, Associazione La Nostra Famiglia, 23842 Bosisio Parini, Italy

5. Physical Medicine and Rehabilitation Unit, S. Maria delle Croci Hospital, Azienda Unità Sanitaria Locale Romagna, 48121 Ravenna, Italy

6. Developmental Neuroscience Clinical Department, IRCCS Fondazione Stella Maris, 56128 Pisa, Italy

7. Physical Medicine and Rehabilitation Unit, IRCCS Istituto Ortopedico Rizzoli, 40136 Bologna, Italy

Abstract

Background: In 2020, a multiprofessional panel was set up in collaboration with the Italian FightTheStroke Foundation family association to produce evidence-based recommendations for the management and neuromotor rehabilitation of persons with cerebral palsy aged 2–18 years to implement in clinical practice in Italy. Methods: The recommendations of these care pathways were developed according to the American Academy for Cerebral Palsy and Developmental Medicine guidelines for Care Pathways Development and the Grading of Recommendations Assessment Development and Evaluation working group for adoption, adaptation, or de novo development of recommendations from high-quality guidelines (GRADE-ADOLOPMENT). Results: Four strong positive recommendations were developed regarding comprehensive management, and twenty-four addressed neuromotor treatment. Conclusions: A holistic, individualized approach was affirmed in terms of both multidimensional patient profile and interdisciplinary management in a network with the school where children and adolescents are integrated. It was defined that all motor rehabilitation approaches must be individually tailored considering age and developmentally appropriate activities as interventions and goals, in light of the reference curves addressing prognosis for Gross Motor Function and Manual Ability Classification Systems. Intervention must be structured with adaptations of the task and/or of the context (objects and environment) based on the analysis of the child’s skills to support motivation and avoid frustration.

Publisher

MDPI AG

Reference79 articles.

1. Definition and classification of cerebral palsy. From syndrome toward disease;Bax;Dev. Med. Child Neurol. Suppl.,2007

2. Surveillance of Cerebral Palsy in Europe (2000). Surveillance of cerebral palsy in Europe: A collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE). Dev. Med. Child Neurol., 42, 816–824.

3. SIMFER-SINPIA Intersociety Commission. Recommendations for the rehabilitation of children with cerebral palsy;Castelli;Eur. J. Phys. Rehabil. Med.,2016

4. Kolaski, K. (2021, August 06). Instructions for AACPDM care pathway development 2020 edition. Available online: https://www.aacpdm.org/UserFiles/file/InstructionsforAACPDMCarePathwayDevelopment2020Edition13Oct2020KK.pdf.

5. World Health Organization (2001). The International Classification of Functioning, Disability and Health: ICF, WHO.

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3