Evaluating a Digitally Delivered, Multi-Modal Intervention for Parents of Children with Type 1 Diabetes: A Proof-of-Concept Study

Author:

Tang Tricia S.12,Sharif Niloufar3,Ng Crystal45,McLean Logan2,Klein Gerri6ORCID,Amed Shazhan45

Affiliation:

1. Department of Medicine, Faculty of Medicine, University of British Columbia, Vancouver, BC V5Z 1M9, Canada

2. T1D Huddle Gordon & Leslie Diamond Health Care Centre, Vancouver, BC V5Z 1M9, Canada

3. Faculty of Education, School of Kinesiology, University of British Columbia, Vancouver, BC V6T 1Z1, Canada

4. Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC V6H 0B3, Canada

5. BC Children’s Hospital, Vancouver, BC V6H 3N1, Canada

6. BC Diabetes, Vancouver, BC V5Y 3W2, Canada

Abstract

Background/Objectives: We examined the feasibility, acceptability, and potential mental health impact of a digital peer support intervention involving videoconferencing and text-based support for parents of school-aged children living with T1D and analyzed posts exchanged by parents on a texting platform. Methods: Eighteen parents were recruited for Huddle4Parents, a 4-month digital intervention that involved four synchronous group-based Zoom sessions coupled with an asynchronous 24/7 peer support texting room. Primary outcomes were feasibility (i.e., ability to recruit n = 20 parents and retain at least 75%) and acceptability (i.e., satisfaction ratings of “good” to “very good”). Baseline and 4-month assessments also measured diabetes distress, quality of life, and perceived support. A content analysis of text exchanges was also performed. Results: All 15 parents who completed the intervention attended at least one Huddle and posted at least one message on the 24/7 peer support room. The retention rate was 83%, with 100% indicating that they would “definitely” or “probably yes” recommend both platforms to other parents. They also rated the topics, facilitator, and overall Huddles as “good” to “excellent.” No changes were observed for psychosocial endpoints. Of the 1084 texts posted, core support themes included the following: (1) dealing with technology and devices; (2) seeking and providing emotional support; (3) managing T1D in the school setting; and (4) exchanging tips and strategies. Conclusions: Huddle4Parents, a digital T1D caregiver intervention offering synchronous and asynchronous support, is feasible based on recruitment, participation, and attrition rates and acceptable as demonstrated by engagement and satisfaction ratings for the Huddles and 24/7 peer support room.

Funder

BC Children’s Hospital Foundation, Lawson Foundation

Michael Smith Health Research BC/JDRF Canada Health Professional-Investigator Award

Publisher

MDPI AG

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