Parental Access to Healthcare following Paediatric Surgery—The Precarious Role of Parents as Providers of Care in the Home

Author:

Nilsson Stefan123ORCID,Hylén Mia45ORCID,Kristensson-Hallström Inger4ORCID,Kristjánsdóttir Gudrún6ORCID,Stenström Pernilla7ORCID,Vilhjálmsson Runar46ORCID

Affiliation:

1. Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden

2. University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden

3. Queen Silvia Children’s Hospital, Behandlingsvägen 7, 416 50 Gothenburg, Sweden

4. Department of Health Sciences, Faculty of Medicine, Lund University, 221 00 Lund, Sweden

5. Department of Intensive and Perioperative Care, Skåne University Hospital, 205 02 Malmö, Sweden

6. Faculty of Nursing and Midwifery, School of Health Sciences, University of Iceland, Eiriksgötu 34, IS-101 Reykjavik, Iceland

7. Department of Pediatric Surgery, Skåne University Hospital Lund, Lund University, Lasarettsgatan 48, 221 85 Lund, Sweden

Abstract

Access to healthcare can facilitate parents’ self-management of their children’s care. Healthcare access can be described as consisting of six dimensions: approachability, acceptability, affordability, availability, appropriateness, and aperture. The aim of this study was to analyse these dimensions of healthcare access experienced by parents caring for their children at home following paediatric surgery. The method-directed content analysis, conducted with the six-dimensional framework of access to healthcare as a guide, was used to analyse twenty-two interviews with parents of children treated with paediatric surgery. All six dimensions were represented in the results. Acceptability was the most frequent dimension, followed by appropriateness and approachability. Affordability, availability, and aperture were less represented. Although access to healthcare after paediatric surgery is generally appropriate and approachable, parents may experience insecurity in performing the self-management needed. Complementary forms of information provision, e.g., telemedicine, can be valuable in this regard.

Funder

Swedish Research Council for Health, Working Life and Welfare

Publisher

MDPI AG

Subject

Pediatrics, Perinatology and Child Health

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